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Abbreviation : CE
Long Form : concept elicitation
No. Year Title Co-occurring Abbreviation
2019 A Conceptual Model of Angelman Syndrome and Review of Relevant Clinical Outcomes Assessments (COAs). ABC-C, ADAMS, AS, CI, CM, COAs, PEDI-CAT
2019 An overview of using qualitative techniques to explore and define estimates of clinically important change on clinical outcome assessments. CD, COA, ISOQOL
2019 Development and adaptation of patient-reported outcome measures for patients who experience itch associated with primary biliary cholangitis. ID, PBC
2019 Development of a novel patient-reported measure for acromegaly: the Acro-TSQ. Acro-TSQ, PROs, SSAs
2019 Exploring content and psychometric validity of newly developed assessment tools for itch and skin pain in atopic dermatitis. AD, CD, eDiary, HRQoL, NRS, PRO, TDIs
2018 Informing a priori Sample Size Estimation in Qualitative Concept Elicitation Interview Studies for Clinical Outcome Assessment Instrument Development. COA
2017 A comparison of three methods to generate a conceptual understanding of a disease based on the patients' perspective. AS, GCM, PRO, SMR
2017 Content Validity of a Willingness to Quit Tool for Use with Current Smokers in Clinical Practice. CD, WTQ
2017 Development and exploration of the content validity of a patient-reported outcome measure to evaluate the impact of migraine- the migraine physical function impact diary (MPFID). MPFID, PRO
10  2017 Development of the Systemic Lupus Erythematosus Steroid Questionnaire (SSQ): a novel patient-reported outcome tool to assess the impact of oral steroid treatment. PRO, SLE, SSQ
11  2017 Development of the Weight-Related Sign and Symptom Measure. CD, WRSSM
12  2017 Patient experience in systemic lupus erythematosus: development of novel patient-reported symptom and patient-reported impact measures. CD, FDA, PRO, SIQ, SLE, SSD
13  2017 Understanding and measuring symptoms and health status in asthma COPD overlap: content validity of the EXACT and SGRQ. ACO, COPD, EXACT, FEV1, PRO, SGRQ
14  2017 What Outcomes are Important for Gout Patients? In-Depth Qualitative Research into the Gout Patient Experience to Determine Optimal Endpoints for Evaluating Therapeutic Interventions. PROs, QOL
15  2016 Patient-Centered Research to Support the Development of the Symptoms of Major Depressive Disorder Scale (SMDDS): Initial Qualitative Research. FDA, MDD, PRO, SMDDS
16  2016 Qualitative Development and Content Validity of the Non-small Cell Lung Cancer Symptom Assessment Questionnaire (NSCLC-SAQ), A Patient-reported Outcome Instrument. NSCLC, NSCLC-SAQ, PRO, SAQ
17  2015 Development and validation of the Diabetic Peripheral Neuropathic Pain Impact (DPNPI) measure, a patient-reported outcome measure. DPN, DPNPI, PRO, RMT
18  2015 Symptoms and markers of symptom severity in asthma--content validity of the asthma symptom diary. ASD, ATS/ERS, GINA
19  2012 Content validity of the Benign Prostatic Hyperplasia Impact Index (BII); a measure of how urinary trouble and problems associated with BPH may impact the patient. BII, CI, NRS
20  2012 The bladder pain/interstitial cystitis symptom score: development, validation, and identification of a cut score. BPIC-SS, BPS, CD, OAB, US
21  2011 Content validation of two SF-36 subscales for use in type 2 diabetes and non-dialysis chronic kidney disease-related anemia. CI, DM, PF, VT