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Abbreviation : PPI
Long Form : patient and public involvement
No. Year Title Co-occurring Abbreviation
2019 "About sixty per cent I want to do it": Health researchers' attitudes to, and experiences of, patient and public involvement (PPI)-A qualitative interview study. ---
2019 Availability and quality assessment of online nutrition information materials for pelvic cancer patients in the UK. PIMs
2019 Challenges and opportunities for involving patients and the public in acute antimicrobial medicine development research: an interview study. ---
2019 Current trends in patient and public involvement in cancer research: A systematic review. ---
2019 Dementia care model: Promoting personhood through co-production. PCC
2019 Getting involved: the extent and impact of patient and public involvement in the Swedish health system. ---
2019 Identification of key transcription factors - gene regulatory network related with osteogenic differentiation of human mesenchymal stem cells based on transcription factor prognosis system. hMSCs, TFs
2019 Patient and public involvement (PPI) in UK surgical trials: a survey and focus groups with stakeholders to identify practices, views, and experiences. ---
2019 Patient and public involvement in medical performance processes: A systematic review. ---
10  2019 Patient and public involvement in the design, administration and evaluation of patient feedback tools, an example in psychiatry: a systematic review and critical interpretative synthesis. ---
11  2019 Patient and public involvement: Two sides of the same coin or different coins altogether? ---
12  2019 Patient involvement in clinical trials: motivation and expectations differ between patients and researchers involved in a trial on urinary tract infections. UTI, UTIs
13  2019 Using information and communication technologies to involve patients and the public in health education in rural and remote areas: a scoping review. ICT
14  2019 Whose perspective is it anyway? Dilemmas of patient involvement in the development of a randomized clinical trial - a qualitative study. ---
15  2018 A coproduced patient and public event: An approach to developing and prioritizing ambulance performance measures. PhOEBE
16  2018 Best practice framework for Patient and Public Involvement (PPI) in collaborative data analysis of qualitative mental health research: methodology development and refinement. CDA
17  2018 Black and minority ethnic group involvement in health and social care research: A systematic review. BME
18  2018 Centralising specialist cancer surgery services in England: survey of factors that matter to patients and carers and health professionals. HCP
19  2018 Co-research with adults with intellectual disability: A systematic review. ---
20  2018 Engaging "seldom heard" groups in research and intervention development: Offender mental health. PWLECJS
21  2018 Ethics and patient and public involvement with children and young people. ---
22  2018 Evidence-based patient/public voice: a patient and public involvement audit in the field of sexual health. ---
23  2018 Extent, quality and impact of patient and public involvement in antimicrobial drug development research: A systematic review. ---
24  2018 Female genital mutilation in the UK- where are we, where do we go next? Involving communities in setting the research agenda. FGM
25  2018 Finding and engaging patients and the public to work collaboratively on an acute infection microbiology research public panel. ---
26  2018 Frequency of reporting on patient and public involvement (PPI) in research studies published in a general medical journal: a descriptive study. ---
27  2018 How to incorporate patient and public perspectives into the design and conduct of research. ---
28  2018 Impact of patient and public involvement on enrolment and retention in clinical trials: systematic review and meta-analysis. ---
29  2018 Impact of patient involvement on clinical practice guideline development: a parallel group study. PICOT
30  2018 Impacts of older people's patient and public involvement in health and social care research: a systematic review. ---
31  2018 It's not just 'What' you do, it's also the 'Way' that you do it: Patient and Public Involvement in the Development of Health Research. NHS, PAGs
32  2018 Lost in Translation: Transforming Behaviour Change Techniques into Engaging Digital Content and Design for the StopApp. BCTs, DBCIs
33  2018 Optimizing patient and public involvement (PPI): Identifying its "essential" and "desirable" principles using a systematic review and modified Delphi methodology. ---
34  2018 Patient involvement in qualitative data analysis in a trial of a patient-centred intervention: Reconciling lay knowledge and scientific method. QDA
35  2018 Preparing researchers for patient and public involvement in scientific research: Development of a hands-on learning approach through action research. ---
36  2018 Principles of patient and public involvement in primary care research, applied to mental health research. A keynote paper from the EGPRN Autumn Conference 2017 in Dublin. ---
37  2018 Prioritizing novel and existing ambulance performance measures through expert and lay consensus: A three-stage multimethod consensus study. ---
38  2018 Public and patient involvement in child health research and service improvements: a survey of hospital doctors. RCPCH, SAS
39  2018 Reciprocal relationships and the importance of feedback in patient and public involvement: A mixed methods study. ---
40  2018 Reflections and experiences of a co-researcher involved in a renal research study. ---
41  2018 Regional working in the East of England: using the UK National Standards for Public Involvement. NIHR, UK
42  2018 Reporting and appraising the context, process and impact of PPI on contributors, researchers and the trial during a randomised controlled trial - the 3D study. ---
43  2018 Rheumatoid Arthritis Portrayal by UK National Newspapers 2011-2016: A Service User - Led Thematic Analysis of Language Used. RA, UK
44  2018 Role of patient and public involvement in implementation research: a consensus study. ---
45  2018 Selective patient and public involvement: The promise and perils of pharmaceutical intervention for autism. ---
46  2018 Service user reflections on the impact of involvement in research. ---
47  2018 Synthesising conceptual frameworks for patient and public involvement in research - a critical appraisal of a meta-narrative review. ---
48  2018 Taking patient and public involvement online: qualitative evaluation of an online forum for palliative care and rehabilitation research. ---
49  2018 The extent, quality and impact of patient and public involvement in primary care research: a mixed methods study. SPCR
50  2018 The journey through care: study protocol for a longitudinal qualitative interview study to investigate the healthcare experiences and preferences of children and young people with life-limiting and life-threatening conditions and their families in the West Midlands, UK. ---
51  2018 Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan-European consultation. ---
52  2018 Using patient and public involvement to improve the research design and funding application for a project aimed at fostering a more collaborative approach to the NHS health check: the CaVIAR project (better Care Via Improved Access to Records). NICE, PRIMER
53  2018 When participants get involved: reconsidering patient and public involvement in clinical trials at the MRC Clinical Trials Unit at UCL. ---
54  2018 Working with Patients and Members of the Public: Informing Health Economics in Child Health Research. ---
55  2017 A research note on the benefit of patient and public involvement in research: The experience of prostate cancer patients regarding information in radiotherapy. PIRg
56  2017 Addressing Deficits and Injustices: The Potential Epistemic Contributions of Patients to Research. ---
57  2017 Development and testing of a medline search filter for identifying patient and public involvement in health research. ---
58  2017 Development of a core outcome set for disease modification trials in mild to moderate dementia: a systematic review, patient and public consultation and consensus recommendations. ADAS-Cog, ADLs, ISRCTN, MMSE, MRI, NIHR
59  2017 Evaluating patient and public involvement in health research: from theoretical model to practical workshop. ---
60  2017 EVALUATION OF PATIENT AND PUBLIC INVOLVEMENT INITIATIVES IN HEALTH TECHNOLOGY ASSESSMENT: A SURVEY OF INTERNATIONAL AGENCIES. HTA, HTAi's, INAHTA, PCIG
61  2017 Exploring the theory, barriers and enablers for patient and public involvement across health, social care and patient safety: a protocol for a systematic review of reviews. ---
62  2017 Forced migrants involved in setting the agenda and designing research to reduce impacts of complex emergencies: combining Swarm with patient and public involvement. NIHR
63  2017 GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. LF, SF
64  2017 GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. LF, SF
65  2017 Involving seldom-heard groups in a PPI process to inform the design of a proposed trial on the use of probiotics to prevent preterm birth: a case study. NGT, RCT
66  2017 Involving the public in mental health and learning disability research: Can we, should we, do we? ---
67  2017 Is it worth it? Patient and public views on the impact of their involvement in health research and its assessment: a UK-based qualitative interview study. ---
68  2017 Learning to work together - lessons from a reflective analysis of a research project on public involvement. ---
69  2017 Network methods to support user involvement in qualitative data analyses: an introduction to Participatory Theme Elicitation. PTE, RCT
70  2017 Priorities for methodological research on patient and public involvement in clinical trials: A modified Delphi process. ---
71  2017 Psychosocial therapy for Parkinson's-related dementia: intervention development. PD, PRD
72  2017 Reaching consensus on reporting patient and public involvement (PPI) in research: methods and lessons learned from the development of reporting guidelines. ---
73  2017 The power of symbolic capital in patient and public involvement in health research. ---
74  2017 Who wants to be involved in health care decisions? Comparing preferences for individual and collective involvement in England and Sweden. ---
75  2016 A patient and public involvement (PPI) toolkit for meaningful and flexible involvement in clinical trials - a work in progress. ---
76  2016 A SHARED study-the benefits and costs of setting up a health research study involving lay co-researchers and how we overcame the challenges. UK
77  2016 Assessing the possibilities and challenges of patient involvement in sexual, reproductive and HIV/AIDS services. SRHH
78  2016 Challenges Facing Healthwatch, a New Consumer Champion in England. ---
79  2016 Combining PPI with qualitative research to engage 'harder-to-reach' populations: service user groups as co-applicants on a platform study for a trial. ---
80  2016 Consumers or Citizens? Whose Voice Will Healthwatch Represent and Will It Matter? Comment on "Challenges Facing Healthwatch, a New Consumer Champion in England". ---
81  2016 Ethical challenges in conducting clinical research in lung cancer. ---
82  2016 Evaluating public involvement in research design and grant development: Using a qualitative document analysis method to analyse an award scheme for researchers. NIHR, RDS
83  2016 From tokenism to empowerment: progressing patient and public involvement in healthcare improvement. ---
84  2016 Hidden caring, hidden carers? Exploring the experience of carers for people with long-term conditions. ---
85  2016 Impact on the individual: what do patients and carers gain, lose and expect from being involved in research? CRN
86  2016 Models and impact of patient and public involvement in studies carried out by the Medical Research Council Clinical Trials Unit at University College London: findings from ten case studies. MRC CTU
87  2016 Older care-home residents as collaborators or advisors in research: a systematic review. ---
88  2016 Patient and public involvement (PPI) in research is perceived to benefit stroke survivors and the research process. Barriers and facilitators exist which can be addressed to enable PPI in stroke research. ---
89  2016 Patient and public involvement in Paediatric Intensive Care research: considerations, challenges and facilitating factors. PIC
90  2016 Patient and public involvement in primary care research - an example of ensuring its sustainability. ---
91  2016 PPI in the PLEASANT trial: involving children with asthma and their parents in designing an intervention for a randomised controlled trial based within primary care. RCT
92  2016 Research essentials. ---
93  2016 Rethinking the relationship between science and society: Has there been a shift in attitudes to Patient and Public Involvement and Public Engagement in Science in the United Kingdom? PES
94  2016 Towards a pedagogy for patient and public involvement in medical education. ---
95  2016 What do pharmaceutical industry professionals in Europe believe about involving patients and the public in research and development of medicines? A qualitative interview study. ---
96  2015 A little more conversation please? Qualitative study of researchers' and patients' interview accounts of training for patient and public involvement in clinical trials. ---
97  2015 Beyond lip service and box ticking: how effective patient engagement is integral to the development and delivery of patient-reported outcomes. PRO, RAG
98  2015 Developing and evaluating guidelines for patient and public involvement (PPI) in research. ---
99  2015 Developing patient-centred care: an ethnographic study of patient perceptions and influence on quality improvement. ---
100  2015 Exploring attitudes and preferences for dementia screening in Britain: contributions from carers and the general public. NHS